My latest email from Jess:
One of the points you made has stuck with me through these past couple of weeks and I still cannot wrap my thoughts around it. You spoke of the evil that God has us dealing with here on Earth, but you don't think it's an intentional guinea pig scenario. I would LIKE to believe this, but I always come back to the question that seems so cliche: A child dies. Yes, there might be a lesson of love and understanding for the people who must survive this baby. But what about the suffering the baby had to experience? Now, what makes sense to me is that our bodies are created in the image, but are flawed. Death is inevitable too...but I just can't see how God plays a part in such tragic situations. Please help me understand how you keep glorifying God every time you see your baby boy in pain from his condition. I do NOT know how you do it....but I sense that your faith gives you peace regarding this situation as well, so maybe that's all it takes to believe in times like that???
Jess sent me this email quite some time ago. I thought I had an answer, but the more I've tried to write it out, the less I feel I can do the answer justice. Anyone want to help out? I will add my thoughts soon. I've just been doing a lot of thinking...